Office of Data Science and Sharing (ODSS) | NICHD – Eunice Kennedy Shriver National Institute of Child Health and … – National Institute of Child Health and Human Development
ODSS was established in 2021 to lead and coordinate NICHD’s activities within data science, bioinformatics, data sharing policy and compliance, and emerging technologies.ODSS’s vision is to enable a culture of responsible and innovative use of data and biospecimens that accelerates research and improves health for NICHD populations. The office’s mission is to:
ODSS is a trusted informational resource for NICHD staff and researchers on all NIH data and specimen sharing policies.
ODSS serves as NICHD’s primary liaison with the NIH Office of the Director’s Office of Data Science and Strategy, to ensure engagement in large NIH data-science and emerging technology programs and ensure alignment with NIH, HHS, and federal programs and policies.
Director Rebecca Rosen’s presentation (PDF 2.2 MB) from the January 2023 Council provides an overview of ODSS activities.
ODSS is a trusted informational resource for NICHD staff and researchers on all NIH data sharing policies.
The new NIH DMS Policy applies to funding applications and proposals submitted to NIH on or after January 25, 2023. The following are helpful links about the new policy for the NICHD investigator community:
DASH is a centralized resource for researchers to store, share, and access de-identified data from studies funded or conducted by NICHD. It also serves as a portal for requesting biospecimens from selected studies within the hub.
E-updates from DASH, published quarterly, provide information on upcoming NICHD data-collection projects, studies available in DASH, including those with biospecimens, as well as other noteworthy data news.
In collaboration with NICHD, NIH, and external stakeholders, ODSS is building a federated, secure research and specimen data ecosystem that will measurably and rapidly facilitate data and specimen sharing by NICHD-funded researchers and increase access to shared data and specimens for the entire research community.
The NICHD Data Ecosystem includes people, data, processes, and technologies that align with the NICHD Strategic Plan and that support NICHD communities’ data science and sharing needs. In addition, ODSS is collecting “user stories” to describe these needs, within the following contexts:
ODSS is currently assessing all data repositories that NICHD researchers use to share data or access shared data for secondary use. This assessment and the communities’ user stories will inform NICHD’s approach to improving sustainability and interoperability across the ecosystem to best support the institute’s needs. The office will also use information from the assessment to update the NICHD Data Repository Finder
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ODSS leads and collaborates on a variety of projects to maximize the responsible and innovative use of data across the NICHD Data Ecosystem. Reports based on these projects will be posted in this section as they become available.
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